Thursday, September 15, 2011

Ultrasound....

So.... as we knew what was going on going into today... my heart knew that there was something wrong with my baby girl, I just didn't want to believe it.  Yes, I have also always believed it was a baby girl... and that too was confirmed today.  =)  She was NOT shy about it either.  Haha!!  I think she was showing off... didn't even cross her legs, but one time when she flipped herself over and put her butt in the air!  =)  So.. anyways... yes... it has been confirmed.  Skittle has CDH... also known as a Congenital Diaphragmatic Hernia.  We have already started the referral process to San Fran.  Please, everyone, keep your fingers crossed that my insurance accepts it!  It can be a long process to get into there, only because of insurance... but hopefully all goes well... I want nothing short of the best for my princess!!!  ♥

♥  No denying Skittle is a girl!  ♥



♥   Gotta love the baby buns!!  ♥

♥   Shelby's favorite picture because Skittle was
doing exactly what I was doing at the same time! ♥
Her arm was up behind her head, just chillin out.  =)

Here is a picture of her diaphragm.  Not that I
expect you to understand it, but some will,
so I just thought that I would share it since I have it.

So as you can imagine, its been a very rough day.  The worst part of the day was telling Shelby the news.  She cried and cried.  I so wish I didn't have to tell her, but that isn't fair.  She is almost 9 years old, she is a very smart girl, and with all the dr's and appointments I will be attending, and most, she will probably have to attend as well, I couldn't keep it from her.  Nor would that really have been fair.  After she was done crying, it was just explained to her what CDH is.  What the process is going to be like.  She knows that mommy is going to have to travel somewhere else(location unknown at this point) to deliver.  She knows that there are no specialists here to care for her when she is born.  She understands that.  Of course, I know she doesn't understand that, mommy will be away from home for a while when it's close time for Skittle to arrive... and then after Skittle is born.  She knows that Skittle will be in the NICU for a while after she is born, to get bigger and stronger.  She understands and also doesn't want me to leave her sister in a strange city, in a strange place, all by herself.  It is going to be a long haul, but we ARE going to get through this!!  Shakyra, she just knows that her sister has a hole, and its in her diaphragm.  Of course she doesn't understand what or where that is, but she does acknowledged it.  It's gonna be hard on the girls when Skittle is born, but they will be in good hands, living with grandma and grandpa while I am away, and daddy can bring them home on the weekends when he isn't working.

Thankfully, I know, Skittle and I will have my amazing friends and family to support me throughout this long, windy, awful journey that I have been chosen to travel.  Next u/s is scheduled for 2 weeks.  Can't wait to see my lil Princess again, and kmfx for no changes.  ♥

2 comments:

  1. Brina this post made me cry! You are so amazing. And you have amazing girls. <3

    Beth

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  2. It's so strange to go back and read these after I've seen what you've been through... :( It doesn't make the diagnosis any better.

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